Understanding what to expect when enrolling in hospice care. Step-by-step guidance for families.
Hospice intake is the initial admission process where a patient is formally enrolled in a hospice care program. This typically takes 1-3 hours and involves paperwork, medical assessment, and care planning.
Most intakes happen at the patient's home, but some hospices may conduct them at their facility. The goal is to understand the patient's medical needs, preferences, and family situation.
You call the hospice to start the process. They'll ask basic information: patient's diagnosis, current medications, and general situation. They'll also explain how hospice works and answer initial questions.
Hospice will contact the patient's physician to request a hospice referral and "do not resuscitate" (DNR) order. The doctor must certify that the patient has a life expectancy of 6 months or less.
Hospice will verify insurance coverage. Most Medicare and Medicaid plans cover hospice 100%. For uninsured or underinsured patients, hospice can often provide services regardless of ability to pay.
A nurse and admissions coordinator visit the patient's home (or facility). They'll:
The hospice team (nurse, doctor, social worker, chaplain) develops an individualized care plan based on the patient's medical needs, preferences, and family situation. This plan is updated regularly.
Confirms you understand hospice philosophy, costs, and coverage
Documents the patient's wishes about CPR and medical intervention
Authorizes hospice to share medical information with authorized family members
For specific treatments or care approaches
Authorizes hospice to bill insurance directly
Take your time: You don't need to rush through paperwork. Ask hospice to explain anything you don't understand. It's okay to ask for time to review documents or to get legal advice.
Coverage: 100% for eligible beneficiaries
Medicare Part A (Hospital Insurance) covers ALL hospice services including nursing, medications, equipment, and therapies. You typically pay nothing out of pocket.
Coverage: Varies by state (usually 100%)
Most states cover hospice through Medicaid. Contact your state's Medicaid office or the hospice directly to confirm coverage.
Coverage: Usually covers 50-100% with pre-approval
Most private insurers cover hospice. Hospice will verify coverage and may need pre-authorization. You may have copays or deductibles.
Ask about charity care or sliding scale fees
Most hospices provide services regardless of ability to pay. Ask directly about financial assistance programs.
Within 24 hours: The hospice nurse will visit to begin regular care and monitor symptoms.
First week: Additional team members (social worker, chaplain, aide) will visit as part of your care plan.
Ongoing: Regular nurse visits (typically 1-3 times per week for stable patients), 24/7 on-call support, and team reviews of the care plan every few days.
Communication: Hospice will keep you informed of any changes and work with you and the patient to adjust care as needed.